IRIS® REGISTRY

Intelligent Research in Sight

The nation’s first comprehensive eye disease clinical registry

Iris Registry Description

The IRIS® Registry (Intelligent Research In Sight) is the nation’s first comprehensive eye disease clinical registry and one of the largest single specialty databases in the world. Users span all practice types, from solo practitioners to large institutions.

Established in 2014, the goals of the IRIS® Registry include :

• Creating both national and interpractice benchmark reports on best practices for improving patient care.
• Assisting practices with meeting federal reporting requirements.
• Enabling data analysis for population health, rare disease research, and new scientific discovery.
• Identifying safety signals in new drugs and devices.

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NEWS SPOTLIGHT

Recently Published

“Prevalence of and Associated Factors for Eyelid Cancer in the American Academy of Ophthalmology Intelligent Research in Sight Registry” was accepted for publication in Ophthalmology Science. In this study, the authors evaluated the prevalence and associated factors of eyelid cancers in the American Academy of Ophthalmology Intelligent Research in Sight (IRIS) Registry. Using this large database of patient records, it was newly observed that smoking was associated with all types of eyelid tumors examined. This new finding in addition to the epidemiologic profile of eyelid cancers observed in this study will aid in identifying patients at risk for eyelid cancers and improving care.

Link to full publication: Baş Z, Sharpe J, Yaghy A, Zhang Q, Shields CL, Hyman L; IRIS Registry Analytic Center Consortium. Prevalence of and Associated Factors for Eyelid Cancer in the American Academy of Ophthalmology Intelligent Research in Sight Registry. Ophthalmol Sci. 2022 Sep 27;3(1):100227. doi: 10.1016/j.xops.2022.100227. PMID: 36439695; PMCID: PMC9692036. https://pubmed.ncbi.nlm.nih.gov/36439695/

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IRIS® Registry Analytic Center Consortium

The IRS Registry Analytic Center Consortium is comprised of 4 institutions, Massachusetts Eye and Ear/Harvard Ophthalmology, Stanford University, University of Washington, and Wills Eye Hospital, in collaboration with the American Academy of Ophthalmology. The IRIS Registry Analytic Center Consortium has full access to the IRIS Registry and works together to advance knowledge in ophthalmology through studies using real world clinical data.

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Inquiries: VisionResearch@willseye.org